|The walk to the hospital takes me through Christchurch's Botanic Gardens which were looking wonderful in the autumn sunshine today.|
PKD is one continuous down-hill ride to kidney failure - at least that’s what the doctors believe. But, for the third year in a row, my kidney function has remained steady at 40% (low, but not dangerous).
“You seem to be atypical” the doctor says. “Coupled with the fact that neither of your parents have PKD, and your diagnosis was fairly late in life, I am wondering whether what you have is really PKD.”
“Well, if it’s not PKD what is it?” I ask.
“Haven’t a clue. In all other respects it looks just like PKD. Your kidneys are hugely enlarged and you even have some cysts on your liver, typical PKD. So it must be PKD. But it should be getting worse and it’s not. Anyway, it doesn’t change how we need to treat it. Controlling blood pressure is the most important thing. Let’s see how that is doing … 120/76. That’s pretty impressive for someone your age."
“So, it looks like PKD, but might be something else. It should be getting worse but it isn’t, and my blood pressure is the best it’s been for years. Sounds like reasonably good news to me.”
“Yes. Looks like we don’t need to see you again until next year.”
So, that was my day at the hospital. The PKD (maybe) is not getting any better but, most importantly, isn’t getting worse. What was a short fuse, seems to have stopped burning - at least for a while. That’s something to feel very thankful about. I guess my cameras will have more work to do yet.